Fibromyalgia advise PLEASE! My mother is suffering from what we believe?

to be Fibromyalgia. She is going to see a Neurologist (probably her 5th doctor) tomorrow but is scared that the doctor will also just give her some medicine which after all these years hasn't helped. Is there anybody here who has had relief from FM and what did they do? Also, can a Neurologist help with this kind of situation and what can my mother ask her?


Fibromyalgia advise PLEASE! My mother is suffering from what we believe?
it is a disorder of the central nervous system--but most docs--including rheumatologists and neurologists are incompetant when it comes to fibro---





do you have anyway of knowing if this is a fibrofriendly doc--





when i had a seizure and head injury-i tried 4 neurologists--until i stopped telling them of my history of fibro--than they were willing to talk to me.....otherwise they say--your fine/stay active--and I was not fine--i have permanant brain damage.








to find fibro friendly docs


email


kindness@fibrobetsy.com





she keeps a list of docs recommended by other patients--and takes off docs with bad reviews unlike otehr so called referral lists





i've tried acupuncture, aromatherapy, chiropractic...a couple years ago I was eating good and exercising--and I got worseFibromyalgia advise PLEASE! My mother is suffering from what we believe?
Acupuncture helped a little bit, so did pilates. Honestly you have to just work through the pain sometimes to get a bit better, as much as it hurts you can't try and live life by stopping because it hurts. With that being said, know your limits and triggers, get plenty of sleep, sometimes sleep is the only way to avoid the pain. She should ask her neurologist if he can help with it (I was diagnosed by a rheumatologist, but I don't know if things have changed in the past 6 years), but once it's been diagnosed her primary care doctor should be able to follow up on it with her. You just have to keep in mind that what works for some people, doesn't work at all for others. Medications like lyrica and neurontin can only go so far. Just keep trying different forms of alternative medicine (like acupuncture, yoga, biofeedback/neurofeedback). There's not going to be any definitive answer that's going to help her out, you have to experiment. I've tried all kinds of therapies, medications, physical activities, supplements, dietary restrictions and the like, and it's just hit and miss.
My fibro was diagnosed by a rheumatologist by testing (poking) for the pressure points. He put me on some meds--which helped only a little. The symptom that sent me to my general practitioner (who referred me to the rheumatologist) was difficulty breathing. The referral was made after tests ruled out heart disease (I was only in my 40s at the time, although I have been diagnosed for about 10-15 years now).





A friend with fibro loaned me some newsletters (I wish I could remember the source) and I read about some promising research with CoQ10, and some with magnesium. After taking 100 mg of CoQ10 for only 3 days, I could breathe better.


Now I am taking calcium and magnesium for bone health, and several other supplements for general health, and I feel much better until I get under a lot of stress. I have had to learn to pace myself to no longer burn the candle at both ends.


A book I found helpful was: All About Coenzyme Q-10 by Ray Sahelian, M.D. although it did not specifically talk much about fibromyalgia. Possibly one of the reasons, though, that we feel so drained of energy is a problem at the cellular energy source. For that, apparently, CoQ10 seems to be helpful.
You can get straight-forward, practical information on a free web site.





www.FibroFix.com





By a Fibro who has been beating the symptoms for over 8 years.





How to test, diagnose and relieve all symptoms.





Use over the counter meds with tricks and tips.





Confidential free help by email or phone.






See my FMS site at http://www.fms-help.com - I have lots of advice, support, research and info there. I've had FMS since 1982 - my personal story is at http://www.fms-help.com/fibro.htm. I am now 57. You can subscribed to my free FMS newsletter from my homepage (see top). I have been 95% pain free for many years now - see http://www.fms-help.com/what.htm (scroll halfway down), but I still battle the sleep disorder and resulting fatigue. My situation got lots worse after working in toxic mold in 2005 (a neurotoxin) http://www.fms-help.com/mold.htm